2019 Conference Schedule
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Thursday, April 11, 2019
Joseph B. Martin Conference Center,
77 Avenue Louis Pasteur, Boston, MA 02115
| Time | Description | Speakers |
| 7:15 – 8:00 a.m. | Registration and Breakfast | |
| 8:00 – 8:15 a.m. | Welcome Address | Rebecca Brendel |
| Legal Contours of Physician-Assisted Death and End-of-Life Care in the U.S. | Moderator: Carmel Shachar | |
| 8:15 – 8:30 a.m. | Introduction, Terminology, and Background | Carmel Shachar |
| 8:30 – 9:00 a.m. | Legal update on MAID, VSED, and PSU in the United States | Thaddeus Pope |
| 9:00 – 9:30 a.m. | Paths to Legalization and the Massachusetts Experience | Brendan Abel |
| 9:30 – 10:00 a.m. | Q & A | |
| 10:00 – 10:15 a.m. | Break | |
| International Legal Perspectives and Experience | Moderator: Emily Rubin | |
| 10:15 – 10:40 a.m. | Canada’s Constitutionalized Path to Medical Assistance in Dying: Where is it heading? | Trudo Lemmens |
| 10:40 – 11:05 a.m. | The Regulation and Monitoring of Euthanasia in Belgium | Sigrid Sterckx |
| 11:05 – 11:30 a.m. | Shifting Limits of Self-Determination in Dutch Euthanasia Law and Practice |
Britta van Beers |
| 11:30 – 11:45 a.m. | Q & A | |
| Conceptualizing the End of Life | Moderator: Rebecca Brendel | |
| 11:45 a.m. – 12:30 p.m. | Coda di Vita: An argument for a new life stage in a technological age | Michael Bostwick |
| 12:30 – 1:30 p.m. | Lunch | |
| Clinical Considerations in End-of-Life Care | Moderator: Christine Mitchell | |
| 1:30 – 1:55 p.m. | A Palliative Care Approach to Responding to Requests for Hastened Death | Laura Petrillo |
| 1:55 – 2:20 p.m. | Responding to Intractable Suffering: Are palliative sedation & VSED enough? | Timothy Quill |
| 2:20 –2:45 p.m. | Disparities in Palliative and Hospice Care | Justin Sanders |
| 2:45 – 3:10 p.m. | Creating Communities of Care through Spirituality | Wylin Wilson |
| 3:10 – 3:20 p.m. | Q & A | |
| 3:20 – 3:30 p.m. | Break | |
| 3:30 – 4:30 p.m. | Should the Option of Physician-Assisted Death Be part of Good Palliative Care? | Discussants: Timothy Quill & Diane Meier Moderator: Vicki Jackson |
| Family Narratives on Physician-Assisted Death | Moderator: Mildred Solomon | |
| 4:30 – 4:50 p.m. | Brittany Maynard’s Perspective on Medical Aid-in-Dying | Dan Diaz |
| 4:50 – 5:10 p.m. | Personal Reflections | Marcia Angell |
| 5:10 – 5:30 p.m. | Discussion | |
| 5:30 – 6:30 p.m. |
Reception: Lobby Joseph Martin Conference Center |
Friday, April 12, 2019
Joseph B. Martin Conference Center,
77 Avenue Louis Pasteur, Boston, MA 02115
| Time | Description | Speakers |
| 7:15 – 8:00 a.m. | Breakfast | |
| Decisional, Cognitive, and Emotional Capacity | Moderator: David Sontag | |
| 8:00 – 8:25 a.m. | Decisional Capacity Assessment and Patients’ Requests | Thomas Strouse |
| 8:25 – 8:50 a.m. | Differentiating Suicide from Life-Ending Acts and End-of-Life Decisions | Michael Bostwick |
| 8:50 – 9:05 a.m. | The Dementia Trajectory and the Ethics of Assisted Dying | Nancy Berlinger |
| 9:05 – 9:20 a.m. | Q&A | |
| 9:20 – 9:30 a.m. | Break | |
| Data on Assisted-Death Practices in the U.S. and Canada | Moderator: Keren Ladin | |
| 9:30 – 10:00 a.m. | The Oregon Death with Dignity Act: More than 20 years’ experience | Linda Ganzini |
| 10:00 – 10:15 a.m. | Overview of the California End-of-Life Option Act | Neil Wenger |
| 10:15 – 10:30 a.m. | MAID in Colorado: More questions than answers | Matthew Wynia |
| 10:30 – 10:55 a.m. | Access, Justice, and the Implementation of Medical Aid-in-Dying: Lessons from Vermont |
Mara Buchbinder |
| 10:55 – 11:20 a.m. | Lessons from Canada | Jennifer Gibson |
| 11:20 – 11:30 a.m. | Q & A | |
| 11:30 – 11:40 a.m. | Break | |
| Personal and Institutional Perspectives | Moderator: Jonathan Marron | |
| 11:40 a.m. – 12:05 p.m. | Autonomy, Dignity, and the Normalization of Assisted Suicide | John Kelly |
| 12:05 – 12:30 p.m. | “A View to the Possible Future” for Massachusetts Hospital Systems | James Tulsky |
| 12:30 – 1:30 p.m. | Lunch: Joseph Martin Conference Center, Lobby | |
| Implementation and Practice Variability: Lessons from California | Moderator: Lachlan Forrow | |
| 1:30 – 1:50 p.m. | Physician Aid-in-Dying in California: Facing the challenges of implementation | Barbara Koenig |
| 1:50 – 2:10 p.m. | Health System Implementation of the California End-of-Life Option Act | Neil Wenger |
| 2:10 – 2:30 p.m. | Medical Aid-in-Dying: Operational experience and learnings at Kaiser Permanente, Northern California | Ann Gordon |
| 2:30 – 2:50 p.m. | Kaiser Permanente Southern California Medical Aid-in-Dying Implementation: strategies, challenges, and outcomes | Tracey Bush |
| 2:50 – 3:10 p.m. | Medical Aid-in-Dying in California: A two-year report from the bedside | Lonny Shavelson |
| 3:10 – 3:20 p.m. | Q & A | |
| 3:20 – 3:30 p.m. | Break | |
| Charting a Path Forward | Moderator: Robert Truog | |
| 3:30 – 3:50 p.m. | Health System Priorities for Patient-Centered End-of-Life Care | Laura Petrillo |
| 3:50 – 4:10 p.m. | Addressing Quality-of-Care Complexities in the Context of Disability | Lisa Iezzoni |
| 4:10 – 4:30 p.m. | Controlling Death? From questions, toward community | Terri Laws |
| 4:30 – 4:40 p.m. | Q&A | |
| 4:40 – 5:00 p.m. | The Benefits of Sensitive and Standardized Data Collection around End-of-Life Options | Matthew Wynia |
| 5:00 – 5:20 p.m. | Lessons, Challenges, and Next Steps for Massachusetts | Lachlan Forrow |
| 5:20 – 5:40 p.m. | Reflections and Future Directions Challenges for Policy/ Discussion | Mildred Solomon |
| 5:40 – 5:50 p.m. | Q&A | |
| 5:50 p.m. | Closing Remarks | Rebecca Brendel |